I hope everyone is well.
Today’s topic is visual impairment. If you didn’t know I am visually impaired and have a condition called Retinitis Pigmentosa (RP).
Today I will talk about my experience with Retintis Pigmentosa and how I deal with it on a daily basis.
Living with this eye disease is very hard but I have to learn to cope with it. I was diagnosed with this disease at the age of six. My parents started to notice something was wrong when I was about three years of age so from the age of three I was going back and forth to hospital but the doctors would never come to a conclusion as to what my condition was. Retinitis Pigmentosa (RP for short) is a very rare disease and this is why it took over three years for me to get diagnosed with this particular condition.
When I was first diagnosed I was registered as being Partially sighted but as the years have gone by my vision has deteriorated and when I was about thirteen years old I was registered as being Blind/Severely Sight Impaired.
I am sixteen now and I still have quite a bit of vision but it is much worse than it was a few years ago.
As a child in primary school I found it very hard to take part in certain activities such as sport because if we would be playing football or whatever I would never be able to see the ball and I would always be scared that it would hit me. I always misjudge where an object is, I might think something is really close to me but it’s actually further than I expected and vice versa. This results in me crashing into objects, which is quite embarrassing if I’m out in public.
I started learning braille at the age of ten and have now learnt it in three languages. Braille is a code in a way which consists of six dots, each with a different meaning and it allows blind/VI people to read and write. Although technology is getting so advanced these days that not many people learn braille nowadays as it’s easier to use the magnification on a computer or a screen reader.
I also learned how to use the white cane whilst in primary school, although I’ve never used it out in public because I’m to self-conscious about it. Although I am going to start using it again to see if it might boost my confidence. (Update : It is now 2017, two years on from the original publication of this post and I now use my cane out in public and feel so much more confident when using it).
Having the condition that I have means that I have night blindness, this means when it’s dark outside or when a room/corridor is dark I go completely blind and I can’t see a thing. As you can imagine this is very scary and it’s the time of day when I feel most anxious.
I think that’s all I have to say for today, if you would like me to do another post about RP then please let me know.
I hope this blog post helped some of you and helped you understand what Retinitis Pigmentosa is.
I would love to hear your opinions about this blog post so please comment them below.
Enjoy the rest of your day.
Until next time.